Share

Lynn Wein Bush

Ph.D., M.S., M.A.

Bioethicist-Developmental Scientist

Faculty, Genetics and Genomics, Pediatrics, Boston Children's Hospital

Member of the Faculty, HMS Center for Bioethics

Faculty, HMS Genetics Training Program

Lecturer on Pediatrics pt, Harvard Medical School


Dr. Bush is a clinical and research bioethicist, developmental scientist, and educator with appointments as Lecturer on Pediatrics, pt Harvard Medical School; Faculty and Research Associate, Boston Children’s Hospital division of Genetics and Genomics, department of Pediatrics; and Faculty HMS Genetics Training Program. Dr. Bush is a member of the Faculty HMS Center for Bioethics; Affiliate Faculty RSZ Translational Neuroscience Center, member of the BCH Maternal Fetal Care Center Fetal Therapy Board, member of The Academy at HMS and member of BCH Academy for Innovative Education. She is bioethicist team member to the BCH Metabolism and the Boston Lysosomal Disorders (BoLD) programs and is the Co-Chair as well as the HMS representative for NORDs Center of Excellence in Rare Disease Policy and Advocacy workgroup. Dr. Bush is also Collaborator to the Timothy Yu lab considering ethical, societal, and policy aspects of individualized genome medicines as rare as n-of-1. In addition, she is an associate investigator and consultant at the NHGRI for the Social-Behavioral Research Branch intramural grant (PI Koehly) on caregivers of children with rare or undiagnosed genetic conditions. 


Dr. Bush serves as a bioethicist, liaison, and has leadership roles on national and international advisory committees, including Am College Medical Genetics-Genomics, Society Inherited Metabolic Disorders, International Society Prenatal Diagnosis & Therapy, Society Maternal-Fetal Medicine, Newborn Screening Translational Research Network, Am Society Bioethics and Humanities, and Am Public Health Association. Currently, she is co-guest editor (with Olaf Bodamer) of a Special Issue on Ethical and Psychosocial Aspects of Genomics in the Neonatal Period for the Intl J Neonatal Screening, is Ethics editor of Global Updates e-zine from the Intl Society of Prenatal Diagnosis, and is author of ethics chapters in two genetics textbooks (both in press, Elsevier). Dr. Bush has experience developing and disseminating policy points to consider with emerging genomic technologies, including having chaired and co-chaired ACMG guidance statements. She was honored with the Declan Hurley Endowed Bioethics Visiting Professorship at Children’s Hospital Los Angeles.


She earned degrees from Columbia University in Clinical Psychology, child and neuro subspecialty (PhD, Internship, and Fellowships); in Bioethics (MS); and in Developmental Psychology (MA) – with genetics, neurology, bioethics, neonatology, qualitative research, and public heath throughout each degree and training program. Post-graduate studies in neuroscience, fetology, and genomics further inform her research, writing, and teaching on the complexities and uncertainties posed during the prenatal-pediatric periods, especially for rare orphan diseases. Dr. Bush was previously at Columbia University Medical Center, as Faculty Pediatric Clinical Genetics, Faculty for their Program in Women and Children’s Bioethics, Associate Faculty Center for Bioethics, member Children’s Hospital NY Clinical Ethics Committee, member Pediatrics/Maternal-Fetal-Medicine Genomic sign-out team and case conference.


Contact Infomation

email:

lynn.bush@childrens.harvard.edu

Lynn Wein Bush

Ph.D., M.S., M.A.

Bioethicist-Developmental Scientist

Faculty, Genetics and Genomics, Pediatrics, Boston Children's Hospital

Member of the Faculty, HMS Center for Bioethics

Faculty, HMS Genetics Training Program

Lecturer on Pediatrics pt, Harvard Medical School


Dr. Bush is a clinical and research bioethicist, developmental scientist, and educator with appointments as Lecturer on Pediatrics, pt Harvard Medical School; Faculty and Research Associate, Boston Children’s Hospital division of Genetics and Genomics, department of Pediatrics; and Faculty HMS Genetics Training Program. Dr. Bush is a member of the Faculty HMS Center for Bioethics; Affiliate Faculty RSZ Translational Neuroscience Center, member of the BCH Maternal Fetal Care Center Fetal Therapy Board, member of The Academy at HMS and member of BCH Academy for Innovative Education. She is bioethicist team member to the BCH Metabolism and the Boston Lysosomal Disorders (BoLD) programs and is the Co-Chair as well as the HMS representative for NORDs Center of Excellence in Rare Disease Policy and Advocacy workgroup. Dr. Bush is also Collaborator to the Timothy Yu lab considering ethical, societal, and policy aspects of individualized genome medicines as rare as n-of-1. In addition, she is an associate investigator and consultant at the NHGRI for the Social-Behavioral Research Branch intramural grant (PI Koehly) on caregivers of children with rare or undiagnosed genetic conditions. 


Dr. Bush serves as a bioethicist, liaison, and has leadership roles on national and international advisory committees, including Am College Medical Genetics-Genomics, Society Inherited Metabolic Disorders, International Society Prenatal Diagnosis & Therapy, Society Maternal-Fetal Medicine, Newborn Screening Translational Research Network, Am Society Bioethics and Humanities, and Am Public Health Association. Currently, she is co-guest editor (with Olaf Bodamer) of a Special Issue on Ethical and Psychosocial Aspects of Genomics in the Neonatal Period for the Intl J Neonatal Screening, is Ethics editor of Global Updates e-zine from the Intl Society of Prenatal Diagnosis, and is author of ethics chapters in two genetics textbooks (both in press, Elsevier). Dr. Bush has experience developing and disseminating policy points to consider with emerging genomic technologies, including having chaired and co-chaired ACMG guidance statements. She was honored with the Declan Hurley Endowed Bioethics Visiting Professorship at Children’s Hospital Los Angeles.


She earned degrees from Columbia University in Clinical Psychology, child and neuro subspecialty (PhD, Internship, and Fellowships); in Bioethics (MS); and in Developmental Psychology (MA) – with genetics, neurology, bioethics, neonatology, qualitative research, and public heath throughout each degree and training program. Post-graduate studies in neuroscience, fetology, and genomics further inform her research, writing, and teaching on the complexities and uncertainties posed during the prenatal-pediatric periods, especially for rare orphan diseases. Dr. Bush was previously at Columbia University Medical Center, as Faculty Pediatric Clinical Genetics, Faculty for their Program in Women and Children’s Bioethics, Associate Faculty Center for Bioethics, member Children’s Hospital NY Clinical Ethics Committee, member Pediatrics/Maternal-Fetal-Medicine Genomic sign-out team and case conference.


Recent Publications

Experiences of Families Caring for Children with Newborn Screening-Related Conditions: Implications for the Expansion of Genomics in Population-Based Neonatal Public Health Programs

Published On 2022 Jun 01

Journal article

With the expansion of newborn screening conditions globally and the increased use of genomic technologies for early detection, there is a need for ethically nuanced policies to guide the future integration of ever-more comprehensive genomics into population-based newborn screening programs. In the current paper, we consider the lived experiences of 169 family caregivers caring for 77 children with NBS-related conditions to identify lessons learned that can inform policy and practice related to...


Metabolic providers in crisis - Burning out on the road to burnout?

Published On 2021 Nov 23

Journal article

No abstract