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Lynn Wein Bush

Ph.D., M.S., M.A.

Bioethicist-Developmental Scientist

Faculty, Genetics and Genomics, Pediatrics, Boston Children's Hospital

Member of the Faculty, HMS Center for Bioethics

Faculty, HMS Genetics Training Program

Lecturer on Pediatrics pt, Harvard Medical School


Dr. Bush is a clinical and research bioethicist, developmental scientist, and educator with appointments as Lecturer on Pediatrics, pt Harvard Medical School; Faculty and Research Associate, Boston Children’s Hospital division of Genetics and Genomics, department of Pediatrics; and Faculty HMS Genetics Training Program. Dr. Bush is a member of the Faculty HMS Center for Bioethics; Affiliate Faculty RSZ Translational Neuroscience Center, member of the BCH Maternal Fetal Care Center Fetal Therapy Board, member of The Academy at HMS and member of BCH Academy for Innovative Education. She is bioethicist team member to the BCH Metabolism and the Boston Lysosomal Disorders (BoLD) programs and is the Co-Chair as well as the HMS representative for NORDs Center of Excellence in Rare Disease Policy and Advocacy workgroup. Dr. Bush is also Collaborator to the Timothy Yu lab considering ethical, societal, and policy aspects of individualized genome medicines as rare as n-of-1. In addition, she is an associate investigator and consultant at the NHGRI for the Social-Behavioral Research Branch intramural grant (PI Koehly) on caregivers of children with rare or undiagnosed genetic conditions. 


Dr. Bush serves as a bioethicist, liaison, and has leadership roles on national and international advisory committees, including Am College Medical Genetics-Genomics, Society Inherited Metabolic Disorders, International Society Prenatal Diagnosis & Therapy, Society Maternal-Fetal Medicine, Newborn Screening Translational Research Network, Am Society Bioethics and Humanities, and Am Public Health Association. Currently, she is co-guest editor (with Olaf Bodamer) of a Special Issue on Ethical and Psychosocial Aspects of Genomics in the Neonatal Period for the Intl J Neonatal Screening, is Ethics editor of Global Updates e-zine from the Intl Society of Prenatal Diagnosis, and is author of ethics chapters in two genetics textbooks (both in press, Elsevier). Dr. Bush has experience developing and disseminating policy points to consider with emerging genomic technologies, including having chaired and co-chaired ACMG guidance statements. She was honored with the Declan Hurley Endowed Bioethics Visiting Professorship at Children’s Hospital Los Angeles.


She earned degrees from Columbia University in Clinical Psychology, child and neuro subspecialty (PhD, Internship, and Fellowships); in Bioethics (MS); and in Developmental Psychology (MA) – with genetics, neurology, bioethics, neonatology, qualitative research, and public heath throughout each degree and training program. Post-graduate studies in neuroscience, fetology, and genomics further inform her research, writing, and teaching on the complexities and uncertainties posed during the prenatal-pediatric periods, especially for rare orphan diseases. Dr. Bush was previously at Columbia University Medical Center, as Faculty Pediatric Clinical Genetics, Faculty for their Program in Women and Children’s Bioethics, Associate Faculty Center for Bioethics, member Children’s Hospital NY Clinical Ethics Committee, member Pediatrics/Maternal-Fetal-Medicine Genomic sign-out team and case conference.


Contact Infomation

email:

lynn.bush@childrens.harvard.edu

Lynn Wein Bush

Ph.D., M.S., M.A.

Bioethicist-Developmental Scientist

Faculty, Genetics and Genomics, Pediatrics, Boston Children's Hospital

Member of the Faculty, HMS Center for Bioethics

Faculty, HMS Genetics Training Program

Lecturer on Pediatrics pt, Harvard Medical School


Dr. Bush is a clinical and research bioethicist, developmental scientist, and educator with appointments as Lecturer on Pediatrics, pt Harvard Medical School; Faculty and Research Associate, Boston Children’s Hospital division of Genetics and Genomics, department of Pediatrics; and Faculty HMS Genetics Training Program. Dr. Bush is a member of the Faculty HMS Center for Bioethics; Affiliate Faculty RSZ Translational Neuroscience Center, member of the BCH Maternal Fetal Care Center Fetal Therapy Board, member of The Academy at HMS and member of BCH Academy for Innovative Education. She is bioethicist team member to the BCH Metabolism and the Boston Lysosomal Disorders (BoLD) programs and is the Co-Chair as well as the HMS representative for NORDs Center of Excellence in Rare Disease Policy and Advocacy workgroup. Dr. Bush is also Collaborator to the Timothy Yu lab considering ethical, societal, and policy aspects of individualized genome medicines as rare as n-of-1. In addition, she is an associate investigator and consultant at the NHGRI for the Social-Behavioral Research Branch intramural grant (PI Koehly) on caregivers of children with rare or undiagnosed genetic conditions. 


Dr. Bush serves as a bioethicist, liaison, and has leadership roles on national and international advisory committees, including Am College Medical Genetics-Genomics, Society Inherited Metabolic Disorders, International Society Prenatal Diagnosis & Therapy, Society Maternal-Fetal Medicine, Newborn Screening Translational Research Network, Am Society Bioethics and Humanities, and Am Public Health Association. Currently, she is co-guest editor (with Olaf Bodamer) of a Special Issue on Ethical and Psychosocial Aspects of Genomics in the Neonatal Period for the Intl J Neonatal Screening, is Ethics editor of Global Updates e-zine from the Intl Society of Prenatal Diagnosis, and is author of ethics chapters in two genetics textbooks (both in press, Elsevier). Dr. Bush has experience developing and disseminating policy points to consider with emerging genomic technologies, including having chaired and co-chaired ACMG guidance statements. She was honored with the Declan Hurley Endowed Bioethics Visiting Professorship at Children’s Hospital Los Angeles.


She earned degrees from Columbia University in Clinical Psychology, child and neuro subspecialty (PhD, Internship, and Fellowships); in Bioethics (MS); and in Developmental Psychology (MA) – with genetics, neurology, bioethics, neonatology, qualitative research, and public heath throughout each degree and training program. Post-graduate studies in neuroscience, fetology, and genomics further inform her research, writing, and teaching on the complexities and uncertainties posed during the prenatal-pediatric periods, especially for rare orphan diseases. Dr. Bush was previously at Columbia University Medical Center, as Faculty Pediatric Clinical Genetics, Faculty for their Program in Women and Children’s Bioethics, Associate Faculty Center for Bioethics, member Children’s Hospital NY Clinical Ethics Committee, member Pediatrics/Maternal-Fetal-Medicine Genomic sign-out team and case conference.


Recent Publications

Past as Prologue: Predicting Potential Psychosocial-Ethical Burdens of Positive Newborn Screens as Conditions Propagate

Published On 2024 Feb 23

Journal article

We look to the past as prologue for guidance in predicting and circumventing potential psychosocial-ethical challenges, including those that may influence the attachment process for some parents. We consider the evolution of bioethics and developmental psychology as they intersect with newborn screening while exploring potential implications of positive findings, be they false positives, true positives, or secondary as well as incidental findings. We reflect on navigating the complex landscape...


NBSTRN Tools to Advance Newborn Screening Research and Support Newborn Screening Stakeholders

Published On 2023 Nov 21

Journal article

Rapid advances in the screening, diagnosis, and treatment of genetic disorders have increased the number of conditions that can be detected through universal newborn screening (NBS). However, the addition of conditions to the Recommended Uniform Screening Panel (RUSP) and the implementation of nationwide screening has been a slow process taking several years to accomplish for individual conditions. Here, we describe web-based tools and resources developed and implemented by the newborn screening...